Caregivers Are Struggling in Silence

not a single response. goes to show how much people give a shit about others. until it happens to them.

It's hard

You are not alone! It can be so beyond difficult & the silence can be deafening. The sleep deprivation, isolation, potential poverty, & often anxiety & depression can be overwhelming & devastating! I had 24/7 custody of my (like adopted) son for 2 years. He has a rare terminal disease, nonverbal autism, seizures, insomnia, a minimal immune system, gi issues, and other health conditions. He was/is not in school but is supposed to have respite & nursing. Due to the setup, we didn’t have help, so I was sleeping less than 1 h most nights, was without food 2d or more many times & couldn’t get my meds (but ensured everyone had theirs), was assaulted, etc. I’m grateful for every sec & that he’s with his mom (as that is part of her path & so she has time with him), & that I can still be there. Please feel free to reach out/dm me! Hope that you have a beautiful day filled with light & love! Remember to take a second for yourself and breathe! Mahalo!

it's a big trip and it is hard for a long time.

🙏🏾💪🏾👍🏾

You do struggle in silence bc basically no one cares about the disabled and their families and/or caretakers. Its sad but true, you learn after many years just how much society looks the other way.