Only 50 kids worldwide share Van Foster’s rare KARS mutation, and one of them lives right here in Northern Kentucky. Van’s parents are turning heartbreak into hope, organizing a volleyball fundraiser to support research and connect with other families facing the unknown. Every milestone Van reaches is a huge victory, given the challenges he faces daily. Their story is a powerful reminder of how community support and advocacy can drive change for rare diseases. Would you join a local event like this to help families in need? #News #RareDisease #CommunitySupport