Imagine knowing there’s a cure for your kid’s rare disease—but it’s locked behind a $6 million paywall. That’s Catherine Illingworth’s reality. She’s hustling on TikTok, organizing bake sales, and rallying her network, all to fund a treatment that’s just out of reach. Turns out, thousands of families are in the same boat, forced to become full-time advocates and fundraisers just to give their kids a shot at life. The system? Totally broken. #Health #BodyHealth #RareDisease