Kent mum’s 20-year migraine mystery solved

My heart goes out to anyone who suffers head pains. I have Chiari Malformation (as does my daughter.) I’ve had 2 major brain surgeries a year apart and the following year my daughter was confirmed and had surgery. So each June in 2013, 2014 & 2015 we had a brain surgery in our house. I was in my late 30’s and she was 15. Thankfully we caught her much earlier and she doesn’t suffer as many permanent symptoms but surgery only slows the progression. I have only been 100% pain free once since the end of 2012 (from the age of 36, soon to be & that was after a ketamine infusion at the hospital. With Chiari, in simple terms the bottom portion of your brain is falling into your spinal canal & it comes with many other comorbidities. Sadly most drs are unaware and we have to teach them what it means for us because each person can be so different. I would take a migraine headache over a Chiari headache any day but others are different. Always, always be your own advocate!!

what type of tumor was it. I had a Meningioma taken out last October 29th. I still have horrible headaches. my prayers are with you. 🙏🙏🙏🙏🌸💕

Thank you Lord for making , Nikita Sterling well again. God bless you Nikita.🙏🏼🙏🏼🙏🏼🥰🥰💕

not Chiari but pseudo tumor here. three brain surgeries and the same infection twice. I'm like a human biometer during hurricane season.

Knowing how long it takes to get into the doctor there that's probably how long she had to wait to see a specialist

10 years ago while battling some major bouts. I demanded testing. An MRI showed a mengiomia on my right optic nerve. I was told it was caught by accident and it does not cause my headache/migraines. Being it has not grown over the last 8 years they will not operate because of me possibly losing my eye sight. (I feel like I have been over the past 20 years) Any how, I went for a updated MRI 2 weeks ago and doctor only ordered pills for me to take. They did not help. I can no long lay still more than 2 minutes in the MRI machine without panicking. So I have to wait until October 14 to be Sedated for MRI of both my low back and brain. It is hell getting old! As we say.

How often does Dr just tell patients it's all in their heads? You need to go see a mental health specialist? 🤔🤔🤔🤔 So it isn't people "BRUSHING OFF" Their symptoms IT IS the Dr. not doing the "JOB" They have been trained to do. If You as a Dr. don't know refer the patient to another dr or go get a consult with one of YOUR own colleges. So Please by all means Blame the patient for the lack of care they received.

Wow! So happy for her that she’s ok and headaches are gone. 💕

Been suffering from migraines since I can remember.. going off and on to try to get it figured out since around 2005.. had ct scans and mri scans but they keep telling me there’s nothing of concern.. I also suffer from a TBI that I acquired when I was 5 which I was certain that’s why I’ve been having migraines.. but all they really do is try different meds and hope one helps the migraines.. there’s a small margin of success that they go with.. as long as it’s cut down by at least 30% they consider it a success.. or at least that’s what I was told.. they also like to suggest the Botox crap for it but yeah no thanks.. don’t trust Botox at all.. plus I can only try what my insurance will cover I guess unless I want to pay out of pocket.. it sucks.. I was suffering from migraines every day some much worse than others but since I find something that helps every so often, because it eventually stops being as effective it’s like a revolving door and I’m just tired of it.. 😮‍💨

they say listen to your body, ok you do, but you tell your doctor and they look at you like your crazy, or they push you. off to another doctor who in return and says there's nothing I can do for you. I have severe vertigo/meniere's disease, I fall, pass out and no one wants to help. I don't have a quality of life.