Tag Page Seasalter

Seasalter mom’s fight after rare genetic tragedy

Losing both her husband and son to a hidden genetic illness, Amber Selvey from Seasalter is turning heartbreak into hope for others. Alagille Syndrome, a rare condition that often goes undiagnosed, claimed her loved ones in their sleep—first her husband Jason, then her son Daniel, years apart. Now, Amber’s raising awareness and building a support network for grieving parents through her group, Together in Grief. Her story is a powerful reminder: sometimes, what looks like a simple cold can be something far more serious. How do we support families facing rare diseases and unexpected loss? #Relationships #Seasalter #RareDisease