Misty Brady+Follow26 Docs, 37 Procedures, 1 Shocking DiagnosisImagine seeing 26 doctors and going through 37 procedures, only to be told no one knows what’s wrong with you. That was Nika Beamon’s life for 17 years—until a single blood test finally revealed she had a rare immune disorder, IgG4-RD. Turns out, if you catch it early, you can live a normal life! Her story is wild proof that you should never stop fighting for answers when it comes to your health. Always trust your gut! #MedicalMystery #PatientAdvocacy #RareDisease #HealthJourney #NeverGiveUp #Health50Share
lindacarr+Followwhat they don't tell you about cancer treatmentThe brutal truth about my thyroid cancer journey isn't what you'd expect. While doctors promised I'd "return to normal," post-treatment reality includes persistent fatigue, brain fog, and medication side effects nobody warned me about. People's sympathy has an expiration date too. Initially supportive, they eventually expect you to function normally despite ongoing illness. TV portrays cancer patients as devastated or heroic, but my experience was different—just mild annoyance followed by frustration at how treatment diminished my quality of life. Anyone else has similar experiences as me? #CancerSurvivor #ChronicIllness #PatientAdvocacy #ThyroidCancer #HonestRecovery154121Share
jennifer54+Followanyone else experience sleep fainting?I wake up 1-2 times monthly feeling extremely disoriented and faint, sometimes briefly losing consciousness. Episodes last <60 seconds and ONLY happen during deep sleep. Despite treating my sleep apnea with CPAP and having cardiac workups (I also have daily PVCs), doctors keep dismissing it as "psychological." Has anyone experienced sleep syncope or similar episodes? This is genuinely terrifying and I feel completely dismissed. #SleepSyncope #SleepDisorders #PatientAdvocacy6754Share
Michelle Welch+FollowCancer Survivors Spill the Real TeaCancer care has come a long way, but survivors say there’s still so much we don’t talk about—like the hidden costs and the emotional rollercoaster. At an Axios event, two survivors-turned-advocates shared how their experiences are shaping better support for patients. The big takeaway? Early detection saves lives, but we need more research funding to keep the progress going. And yes, young people—cancer isn’t just an older person’s problem anymore! #CancerSurvivor #EarlyDetection #PatientAdvocacy #Health9239Share
Lisa Ramirez+FollowInsurance Drops Patient Last Minute?!Imagine being prepped for a life-saving lung transplant, only for your insurance to pull the plug hours before. That’s what happened to Deron Wells in California—Cigna approved his double-lung transplant, then reversed their decision the day he was set to leave for surgery. His family is devastated, and the internet is fuming, calling out the coldness of insurance companies. People are rallying for Deron, but wow, the system feels so broken right now. #HealthcareFail #InsuranceNightmare #PatientAdvocacy #Cigna #LungTransplant #Health268Share
xdennis+FollowAnyone else shocked by ultrasound costs?Just got billed $450 for a 10-minute ultrasound that my insurance barely covered! 😡 Anyone found ways to negotiate these costs down or know clinics with transparent pricing? Share your tips or similar experiences below - together we might be able to navigate this healthcare maze better! #HealthcareCosts #MedicalBilling #PatientAdvocacy #UltrasoundExam #Health #BodyHealth40Share
Edward Parrish+FollowWhen the Diagnosis Goes Wrong...Imagine undergoing a hysterectomy only to find out it was unnecessary. That’s the nightmare Rhian Butlin faced after doctors misdiagnosed her with ovarian cancer. Initially, excruciating pain led to a discoverable 25cm tumor, which prompted surgery. Relief turned to confusion when tests showed no cancer—only to later find rare cancer in her appendix! Rhian’s journey highlights the importance of thorough diagnosis. Keep pushing for clarity when it comes to your health! 💪🩺 #HealthMisdiagnosis #StayInformed #PatientAdvocacy574Share
