jose71+FollowWhen doctors don't know what you knowSpent hours researching my condition only to have my doctor dismiss everything I found. How is this all so unknown to actual medical professionals? Sometimes I wonder if I should just print out research papers and bring them to my appointments. Anyone else feel like they're educating their doctors? #PatientAdvocacy #MedicalGaps #ChronicIllness #BeYourOwnAdvocate #Health #BodyHealth7748Share
andrew41+FollowWhy won't doctors just listen to us?If my doctor had actually LISTENED to me describing my symptoms six months ago, I wouldn't be sitting in this specialist's office finally getting a diagnosis after suffering needlessly. The worst part? Being treated like I was overreacting the entire time. Your symptoms are valid. Your pain is real. And you deserve healthcare providers who believe you. #MedicalGaslighting #PatientAdvocacy #ChronicIllness #BeHeard #TrustYourBody #Health #BodyHealth5846Share
lindacarr+FollowNeed advice: Insurance dropped my medsJust got notified my insurance is no longer covering my medication. Has anyone successfully appealed a similar decision? Looking for advice on patient assistance programs, discount cards, or effective ways to challenge this. #InsuranceTips #MedicationAccess #HealthcareHelp #PatientAdvocacy #Health #BodyHealth101Share
tgonzales+FollowHelp! Aging out of my parents' insuranceTurning 26 next week and panicking about health insurance costs! I have multiple chronic conditions and take several brand-name meds (no generics available). Anyone found affordable options or patient assistance programs? What worked for you when you aged out of your parents' plan? Let's share resources! #healthinsurance #chronicillness #patientadvocacy #adulting #medicaltips #Health #BodyHealth51Share
xdennis+FollowAnyone else shocked by ultrasound costs?Just got billed $450 for a 10-minute ultrasound that my insurance barely covered! 😡 Anyone found ways to negotiate these costs down or know clinics with transparent pricing? Share your tips or similar experiences below - together we might be able to navigate this healthcare maze better! #HealthcareCosts #MedicalBilling #PatientAdvocacy #UltrasoundExam #Health #BodyHealth40Share
Misty Brady+Follow26 Docs, 37 Procedures, 1 Shocking DiagnosisImagine seeing 26 doctors and going through 37 procedures, only to be told no one knows what’s wrong with you. That was Nika Beamon’s life for 17 years—until a single blood test finally revealed she had a rare immune disorder, IgG4-RD. Turns out, if you catch it early, you can live a normal life! Her story is wild proof that you should never stop fighting for answers when it comes to your health. Always trust your gut! #MedicalMystery #PatientAdvocacy #RareDisease #HealthJourney #NeverGiveUp #Health50Share
Edward Parrish+FollowWhen the Diagnosis Goes Wrong...Imagine undergoing a hysterectomy only to find out it was unnecessary. That’s the nightmare Rhian Butlin faced after doctors misdiagnosed her with ovarian cancer. Initially, excruciating pain led to a discoverable 25cm tumor, which prompted surgery. Relief turned to confusion when tests showed no cancer—only to later find rare cancer in her appendix! Rhian’s journey highlights the importance of thorough diagnosis. Keep pushing for clarity when it comes to your health! 💪🩺 #HealthMisdiagnosis #StayInformed #PatientAdvocacy574Share
jennifer54+Followanyone else experience sleep fainting?I wake up 1-2 times monthly feeling extremely disoriented and faint, sometimes briefly losing consciousness. Episodes last <60 seconds and ONLY happen during deep sleep. Despite treating my sleep apnea with CPAP and having cardiac workups (I also have daily PVCs), doctors keep dismissing it as "psychological." Has anyone experienced sleep syncope or similar episodes? This is genuinely terrifying and I feel completely dismissed. #SleepSyncope #SleepDisorders #PatientAdvocacy6754Share
