Did You Know Newborn Screening Isn’t Equal?

Imagine being told your newborn isn’t worth screening because of a rare diagnosis. That’s what happened to Sarita Edwards, whose son Elijah was denied basic tests due to his life expectancy. Turns out, newborn screening isn’t as universal as we think—and privacy issues make it even messier. A new report is calling for clear rules and more transparency so families actually know what’s happening with their baby’s genetic info. Early diagnosis can change lives, but only if everyone gets the chance! #NewbornScreening #HealthEquity #PrivacyMatters #RareDisease #Parenting #Health