Jason Weaver+FollowDid You Know Newborn Screening Isn’t Equal?Imagine being told your newborn isn’t worth screening because of a rare diagnosis. That’s what happened to Sarita Edwards, whose son Elijah was denied basic tests due to his life expectancy. Turns out, newborn screening isn’t as universal as we think—and privacy issues make it even messier. A new report is calling for clear rules and more transparency so families actually know what’s happening with their baby’s genetic info. Early diagnosis can change lives, but only if everyone gets the chance! #NewbornScreening #HealthEquity #PrivacyMatters #RareDisease #Parenting #Health01Share
itaylor+FollowNewborn Screening Needs a Major Glow-UpDid you know the U.S. newborn screening system is kinda all over the place? A new national report (with a big assist from RTI’s Don Bailey) says we need way more coordination to keep up with new tech like gene therapy and genome sequencing. Right now, every state does things a little differently, which means some babies might miss out on life-saving advances. The fix? A 10-year plan to unify and upgrade screening for all newborns. This could be a game-changer for early detection! #NewbornScreening #HealthInnovation #PublicHealth #ScienceNews #Health10Share
